I’m sitting in the hospital car park right now, and honestly… I can’t quite believe I’m even here. The last few weeks have felt heavy, like something’s been hanging over me that I couldn’t quite put into words until now. I’m not usually someone who worries about my own health. I mean, I don’t really…

I never thought I’d say this, but social media has really become a lifeline for me, especially as a mum dealing with everything going on with Oakley. I used to think social media was just for keeping up with friends or sharing the odd family photo. But now, it’s so much more—it’s where I’ve found…

We’ve had so many assessments with Oakley, from the sensory tests with the OT, where they asked me all these questions about Oakley’s vision, his hearing, how he reacts to lights, textures, even everyday things like the vacuum or washing machine. They rated everything from moderate to very frequent, and I felt myself trying to…

Hey there, everyone! I always talk to you about being a mum and about my kids—the best things that EVER happened to me! But I rarely share stories about my childhood. I strongly believe that our early experiences shape the adults we become. And my childhood wasn’t exactly perfect…   When I was born, my dad…

Oakley’s birthday this year was such a mix of emotions for me, like it always is. Every year, I think back to his birth, and all the tough stuff that came with it. It was such a hard time, and while I’m so happy to celebrate him, it’s always bittersweet. There’s this weird blend of…

Summer holidays are supposed to be all about fun in the sun, but let me tell you, they can also be pure chaos! I know I’m not the only parent out there who feels like summer break is less of a break and more of a battle. It’s absolute hell trying to keep everything together,…

I know I shared a lot on my social media, but there is so much I wanted to wait and show on my blog. This is the real story of one of the most traumatic experiences we had in the hospital this time around. After Oakley’s second surgery, he was in the PICU, and they…

I’ve shared so much of Oakley’s journey with you all, and today I want to talk about something we’ve been dealing with recently. After his time in Liverpool, Oakley started having issues with CSF fluid buildup, which raised concerns. The doctors initially thought he might have Hydrocephalus, a condition where excess cerebrospinal fluid builds up…

The drive to Liverpool felt like it took forever. Oakley and I were heading for his ninth surgery. We only got the news a short time ago which I talked about before, and it was a mad rush to get everything organized with the family. Oakley was so unbothered when we got there, always so…

This article is about showing something I haven’t before—Oakley in a coma. These never-before-seen photos reveal what we have really been through. Medical families go through such horrible things, and it’s us parents who remember everything. We’re left with the worries and sleepless nights. I want to bring awareness to other families like ours. This…