I’ve shared so much of Oakley’s journey with you all, and today I want to talk about something we’ve been dealing with recently. After his time in Liverpool, Oakley started having issues with CSF fluid buildup, which raised concerns. The doctors initially thought he might have Hydrocephalus, a condition where excess cerebrospinal fluid builds up…

My mornings have changed so much since Oakley’s recent surgery. I get tons of messages about what life is like now and what new things I need to do as a medical mom now with Oakley, so I thought I’d share it here in my blog!  Every day feels like a balancing act, full of…

This article is about showing something I haven’t before—Oakley in a coma. These never-before-seen photos reveal what we have really been through. Medical families go through such horrible things, and it’s us parents who remember everything. We’re left with the worries and sleepless nights. I want to bring awareness to other families like ours. This…

I hope you guys enjoyed my last blog. I feel so much better after talking to you all about my feelings and emotions I’ve been going through. On 23rd February my mum got a flight up to Newcastle. She had the kids for me as the next morning I was getting picked up by the…

After Liverpool I felt very overwhelmed and emotionally exhausted. My parents, my brother and my sister were very worried about me. I kept myself to myself. I was struggling. My home life wasn’t great. I felt very alone and was dealing with alot. There was nurses in and out of the house like yo-yos. It…

I’ve had a bad day today, I feel like my anxiety takes over some days. However, I find it’s the best time to open up to you guys. So after the traumatic birth, my son needing surgery and having stents to keep his airways open, I next had to go to Liverpool hospital. When Oakley…

Hi my darlings thank you to all my readers. I’m glad I can be open and honest on here. I appreciate every single one of you. I suppose you’re all wondering what happened next. I had no idea my son was struggling to breathe. All I knew is that the hospital checked him over when…

Hey everyone! In this blog I’m taking it back to when Oakley first came home with us. The first night at home was very hard for us as parents. I felt like a 1st time mum again. Having a child with additional needs is a totally different experience. I had to keep saying to myself…

Where do I start with this? Talia asked me to write a blog about that day. The emotions attached to Oakley’s birth are off key! Along with the events leading up to it and after it. My name is Sonia and I’m Talia’s mum. From the day that Talia found out she was pregnant it…

28th of February 2023. This felt like the longest day of my life at this point. I know I had been in similar situations with Oakley and surgeries but nothing like this. My heart was breaking and my emotions took over. The morning of his first major Craniofacial surgery had come around, my mum had…