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  • Oakley’s Journey: Facing New Challenges with Hope

    Oakley’s Journey: Facing New Challenges with Hope

    I’ve shared so much of Oakley’s journey with you all, and today I want to talk about something we’ve been dealing with recently. After his time in Liverpool, Oakley started having issues with CSF fluid buildup, which raised concerns.

  • My New Normal – The Madness of My Post Liverpool Surgeries Morning Routine 

    My New Normal – The Madness of My Post Liverpool Surgeries Morning Routine 

    My mornings have changed so much since Oakley’s recent surgery. I get tons of messages about what life is like now and what new things I need to do as a medical mom now with Oakley, so I thought I’d share it here in my blog! 

  • I’ve not shared this anywhere – until now

    I’ve not shared this anywhere – until now

    This article is about showing something I haven’t before—Oakley in a coma. These never-before-seen photos reveal what we have really been through. Medical families go through such horrible things, and it’s us parents who remember everything. We’re left with the worries and sleepless nights.

  • The real story – Oakley wasn’t in a good place and he frightened us all

    The real story – Oakley wasn’t in a good place and he frightened us all

    I know I shared a lot on my social media, but there is so much I wanted to wait and show on my blog. This is the real story of one of the most traumatic experiences we had in the hospital this time around.

  • The longest five days in Oakley’s journey

    The longest five days in Oakley’s journey

    The drive to Liverpool felt like it took forever. Oakley and I were heading for his ninth surgery. We only got the news a short time ago which I talked about before, and it was a mad rush to get everything organized with the family. Oakley was so unbothered when we got there, always so…

  • Oakley’s scariest surgery so far!

    Oakley’s scariest surgery so far!

    Stepping out of my comfort zone has become a somewhat familiar part of my life, but no matter how many times I do it, it never gets any easier. This time, it’s for my little Oakley’s next surgery, and the knots in my stomach are tighter than ever. We’re navigating new waters—a different hospital with…