Oakley’s Journey: Facing New Challenges with Hope

I’ve shared so much of Oakley’s journey with you all, and today I want to talk about something we’ve been dealing with recently. After his time in Liverpool, Oakley started having issues with CSF fluid buildup, which raised concerns.

The doctors initially thought he might have Hydrocephalus, a condition where excess cerebrospinal fluid builds up in the brain. This was a terrifying thought, especially since Hydrocephalus isn’t part of Apert Syndrome—it’s a completely different condition altogether.

More Like This

Comments

2 responses to “Oakley’s Journey: Facing New Challenges with Hope”

  1. Natalie Turner Avatar
    Natalie Turner

    Baby boy you are doing the whole world so proud! The amount of strength and bravery at such a tiny age is nothing short of a miracle. Talia you continue to keep us all in awe at your determination and commitment to making sure he has as normal of a childhood as possible throughout so much difficulty no mother should have to face. You are truly an inspiration talia. All my love as always xx

    Reply
  2. Kerry Avatar
    Kerry

    I’m always thinking about you Talia and little Oakley! He’s such a little fighter, just like his mum!
    Sending you, Oakley, the boys and sienna lots of love and hugs xxx

    Reply

Leave a Reply

Your email address will not be published. Required fields are marked *